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Hope with Lupus Foundation Walk & Ride 2013
Lupus champion Anatalie Porter Dean, had a clear understanding of the challenges she was about to endured, when she was moved to establish an organization for a cause that lacks community awareness even though over 2 million Americans deal with lupus every day.
Anatalie has been living with Lupus since 2004; she knows firsthand what it’s like to wake up in pain, and go on with her day totally exhausted.
Stepping out in faith, Anatalie founded Hope with Lupus Foundation, Inc. Her career involved experience in education, corporate management and auditing. She felt those were all great traits to complement a non for profit project. She then recruited a team of enthusiastic directors and volunteers to help her extend the mission of bringing lupus awareness and provide much needed support to Lupus fighters.
May 5th, 2013 marked the date of the Hope with Lupus First Annual Walk and Ride. The founder recalls being concern because it had been raining in Central Florida for a few days before the event. But, to her delight and audience enjoyment, the day turned out to render amazing weather.
The event was held at Shadow Bay Park in Orlando. The park is well known for their sports and recreational facilities and family friendly atmosphere. But more importantly, the park had great shade (one of lupus common symptoms is sensitivity to light). Anatalie also shared that the park administration was very helpful with the process of planning the event.
Anatalie describes the moment when the audience began the walk as a “life marker”. She felt, it was real; she was leading a lupus awareness movement. On the other side of town, leaders and members of different motorcycle clubs gathered to ride for Lupus. Their ride began downtown Orlando and ended at Shadow Bay Park, were bikers joined the event for lunch and fellowship. “I feel humbled, it’s our first event and we had supporters come from Jacksonville and even South Florida”, shared Anatalie. Over one hundred people joined Anatalie to support her lupus awareness mission.
Once the walk and ride concluded, the audience stayed and danced to music provided by One Love Event DJ. Hope with Lupus provided cold water, fresh fruits, hot dogs and burgers. Supporters also enjoyed scrumptious lunches provided by Breaking Bread with Mira and Southern Epicure. Sweet delicious cake pops and cupcakes were provided by The Bakeree & Monica’s Comfort Foods and Coolibar, Sun Protection You Wear, kindly donated shirts and coupons. At the end, attendees also took home, “Hope with Lupus Grab Bags” filled with neat gifts and lupus awareness literature.
The event served as an opportunity for Lupus champions and their supporters to gather and spread awareness about this silent giant. Donations secured on this event, provided support to two Lupus patients. The first had been dealing with a lupus related hospitalization and the other individual had a traffic related accident. Hope with Lupus hired Trinity Cleaning Services and Royal Maids and provided vouchers for a full house cleaning. When asked why this service, Anatalie explained that pain and fatigue are the biggest hurdles of lupus. “Cleaning a house might seem like a simple task, but for a lupus champion it can be a tremendous battle”, she answered.
Here is a testimonial from one of the patients that benefit from the event;
“On April 6th, 2013, I was admitted to the Etobicoke General Hospital for 5 weeks, due to pain from my lupus flare up. After returning home I had the biggest surprise of my life. Hope with Lupus Foundation had surprised me with a Trinity Moving and Cleaning Company Voucher. They cleaned my entire apartment; I just want to take this opportunity to thank Hope with Lupus for this unexpected, wonderful gift from all my family.”- Venetia Tulloch, Toronto Canada.
The organization continues to seek partnerships and collaborations that can help them promote their mission of spreading lupus awareness and support. For more information go to http://www.hopewithlupus.org/
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Last Quarter of 2013, Where is Your Fundraising Support?
The fall is a prelude to lots Holiday season events, family gatherings as the spirit of giving reigns during this time of the year. For some non-profits it can mean slow fundraising efforts. However, less competition for volunteers and donations, can be the time to meet your organizations end of the year needs and a great start for your 2014 fundraising efforts.
Rollins Non Profit Guard Shares 10 Best Practices for Your Fall Fundraiser
The weather is on your side- autumn in Florida means, sunshine and cooler temperatures, making the outdoors very attractive and more comfortable. Plan events where participants can enjoy the weather as they gather to support your mission.
Food for the Soul-Take advantage of the seasonal harvest, and food related events are a hit during this time of the year. Chili contest and bake sales can attract a crowd and provide the necessary income to support organization’s programs.
Service and Support- This time of year, people are in seeking services to make the holiday season more effective. House cleaning, child care while parents are shopping or having a date night, gift wrapping, are all great ideas for fundraising events. Seek partnerships from community leaders that can donate their expertise and auction those items for the non-profit organization.
Little here, little there- Contributions don’t always have to come in bulk or from big donors. Smaller donations and smaller supporters add up and can make an impact on the long run.
Party over here- Instead of planning a costly and time consuming gala, choose smaller gatherings with a casual atmosphere where attendants can relax and enjoy themselves without breaking the bank.
Showcase event- Host a party where you can offer wine tasting, or food sampling. Schools are big on auctions and showcasing local businesses. The organization can benefit from the ticket price and items sales.
A Different type of giving- Share your mission; have family and friends request donations for the organization instead of wedding and birthday presents.
Creative planning-Encourage volunteers and employees to come up with fun ideas for a fundraiser.
Match the Gift- Let your supporters know that they can invite their employers to match their giving. Make sure you keep proper paper work for this effort.
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Discovery Church Fights Hunger with Seeds
Discovery Church’s Love Grows ministries has partnered with Global Aid Network to break the strongholds of poverty around the world.
During the month of October and with the support of more than 3,000 volunteers, the Love Grows project aims to fill 75,000 vegetable garden packs that can provide 4 to 6 months of fresh vegetables for a family in need of nutritional support. Discovery Church Orlando hosted two weeks of volunteered work that will directly impact the lives of families that are currently struggling to be well fed and independent.
Joe Liller, Mobile Operations Manager at GAIN, shared details of how the program teaches families in need to harvest the much needed seeds to sustain their families. Is not only about giving them seeds, some families are even starting businesses by offering their harvest at fruit and vegetable markets”.
Liller, also shared that they usually travel to Dominican Republic, (La Romana, Puerto Plata, San Pedro) about 3 times a year. There they’ve built partnerships with pastors and community leaders to oversee the ground distribution and harvesting of the seeds. Joe also mentioned the need for schools supplies has increase and they want to also make an impact there, to help kids to stay in school.
Discovery Church Orlando is a non-denominational church and their Love Grows ministry intends to “fight world hunger and transform lives”.
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Is Lupus Invisible in our School System?
Anatalie Porte Dean, Founder of Hope with Lupus Foundation attended last March, a Lupus Awareness Seminar at The Harry P. Leu Gardens, Orlando, FL. The seminar was sponsored by the Lupus Foundation of Florida, Lupus Research Institute and UCF College of Nursing.
The Biker Community Takes a Stand Against Hunger
Harvest of Hope Orlando has a new partner on their corner. During the months of February and March, the motorcycle community in Central Florida and Jacksonville steared their attention to the Bithlo area and their nutritional needs. Shannon Autrey (CEO at LadiesLetsRide.com), Ms. Keeley ( PRO at Hard and Heavy Riders), along with their PRO’s 4 Charity partners took on the challenge to create a hunger awareness campaign among the biker community.